When the US Food and Drug Administration announced in May 2017 that a new drug had been approved for the treatment of ALS, my father and I were thrilled. He had been diagnosed with the disease a month earlier but had been turned down for exploratory testing, so this was a godsend. What he didn’t…
My uncle, Abdur, lives in Lahore, Pakistan and was diagnosed with amyotrophic lateral sclerosis (ALS), also known as Motor Neuron Disease, in October 2016. He is a kind and compassionate soul – he has amazing empathy for workers, disabled people and orphans. When he was diagnosed, he was extremely patient and cool, and he’s showed huge faith…
I have suffered from migraine for 30 years and unfortunately my headaches have become worse with time. In recent years, I have approximately 15 days with migraine per month. The migraine attacks are so extremely painful that the only word I can use to describe them is “inhumane”. The attacks come without warning, which causes me to…
Over the past few weeks our founder and CEO, Sjaak, embarked on a unique journey across the world to meet with patients, families, caregivers, patient organisations, doctors, healthcare professionals, healthcare innovators and medical teams. His first stop was in the United Arab Emirates where he met a local business man with amyotrophic lateral sclerosis (ALS),…
Our support team speak with many patients every day, but once in a while, we are lucky enough to be able to relay a story written by the patient. Here is one such story from a gentleman in the United States with Lou Gehrig’s disease, also known as amyotrophic lateral sclerosis (ALS) or motor neuron…
Motor neuron disease (MND), also known as amyotrophic lateral sclerosis (ALS) or Lou Gehrig’s disease, can paralyse the body even though the mind stays sharp. We are privileged to speak with MND patients every day and they never cease to amaze us; much like this Australian who takes it all in stride. Here is Matt’s…
Marcus was diagnosed with amyotrophic lateral sclerosis (ALS) in 2016. For the past four years he has been committed to raising awareness about the underfunded disease and the path to finding a cure. Marcus is passionate about writing and he just published “Always Losing Something”, a fictional novel based on his own personal experience and…
Mislav was diagnosed with Grade II astrocytoma, a type of brain tumour, in 2018 and has struggled with the Croatian healthcare system to obtain a treatment, Fycompa, which was not approved in Croatia. The PharmaMedwork was able to help him access the medicine and he is now one of the patients that we are happy…
Mari Carmen is the older sister of patient Juan Manuel, she takes care of her brother, along with his wife. He was diagnosed with ALS in February 2020 and since then he has followed a clinical trial that includes Ketas (Ibudilast) which is not yet approved in Spain, where Juan Manuel lives. We at TheSocialMedwork…
We help people everywhere in the world access the latest medicines not available in their countries. We are an independent medicines intermediary platform and international pharmacy sourcing each medicine for named patient compassionate use and are overseeing every aspect of the shipping, customs and delivery.
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